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The dementia screening questionnaire for individuals with intellectual disabilities has high sensitivity and specificity in adults with Down's syndrome

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Professor Shoumitro Deb

Division of Neuroscience, Department of Psychiatry, Queen Elizabeth Psychiatric Hospital, Mindelsohn Way, Birmingham, B15 2QZ, UK;



How reliable is the Dementia Screening Questionnaire for Individuals with Intellectual Disabilities (DSQIID)?


179 adults with Down's syndrome and their carers who were identified by contact with clinicians, and via the Leicestershire register of people with intellectual disabilities. Carers who were interested were sent an information sheet and the DSQIID by post, and asked whether the person had other carers willing to fill in the questionnaire to assess inter-rater reliability. On returning the questionnaire, carers were sent another copy to assess test-retest reliability.


UK; time period not stated.


The DSQIID. This was developed in the first phase of the study using qualitative information gathered from carers of 24 adults aged 48–72 years with Down's syndrome and dementia. The DSQIID is completed by a carer who has known the individual for some time …

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  • Source of funding: Baily Thomas Charitable Trust.


  • Competing interests: None declared.